Abby is out of control hungry!!! That is one of the side effects of her prednisone medication - it makes kids ravenously hungry. Yep, it sure does. She wants to eat ALL the time. Prednisone also causes swelling in the face and our little girl is starting to puff up. It's mainly in her face but she's also getting a tummy on her. It's called Cushingoid ~ where the face, neck, and trunk get heavier and the arms and legs stay skinny. She's gainded about 7 pounds in the last few weeks. It's coming on so fast and it's so sad. She's given us some funny comments from it though. I already posted one in the "what they've said" comments. She says that almost every night - "I can't wait until morning so I can eat breakfast!" Here are some other funny eating comments...
The second we're done eating breakfast she'll say "When is it going to be lunchtime?"
When my mom was visiting last month Abby finished her plate before my mom did. I think we were eating taco salad. Abby kept eyeing my mom's plate and was saying how she wished she could eat more. As soon as my mom took her last bite Abby said, "Can I lick your plate?"
She was estatic on Sunday when she learned church had been moved until 2pm and we would be having dinner for lunch. Dinner is her favorite meal and now Sunday is her "most favorite day because I get to eat my big meal earlier!" Seriously I've never seen such joy in her face.
I burned some muffins the other day but apparently I "make the best burnt muffins in town." The boys thought so too.
And today's comment was "this food is so yummy I can't keep my hands of of it!"
We are doing our best to control her portions and make sure she's eating healthy. She's become a salad freak and will eat carrots and yogurt now. Those are good things right?
We met with the rheumotologist yesterday and Abby had her first IVIG treatment. The IVIG helps fight the infection and helps slow down the immflamation of her muscles. Daddy went with her for her treatment while Mommy stayed home with the other kiddos (which is hard because I get the information second hand). Again she is improving but still not meeting the milestones she should be. I'm still confused on what those milestones should be so that is the question for next time. She improves everyday but definately is not back to normal. What kid goes to the park and just sits the majority of the time? We're supposed to aviod excessive weight gain but how do you get a kid to be active and exercise when it hurts her to move? The doctor did say to start tapering the prednisone so hopefully that will slow the weight gain. I also haven't noticed much of an improvement in her rash. She licks her fingers a lot; we think because of the rash.
We're hanging in there. Abby is a trooper with her meds. She will start her shot up again this Friday after being off of it because of antibiotics. So far she hasn't shown any side effects to the IVIG which can include itching, hives, shortness of breath and extreme headaches with vomiting. We'll keep our fingers crossed that she doesn't.
On a different note Abby asked me today if it was ok if a white person marries a black person. She was just wondering about that in case her and Khalil meet up again when they are older and decide to get married. I told her it would be fine for a white person to marry a black person but right now Khalil couldn't take her to the temple because her wasn't a member of the church. Abby plans on inviting him to Primary. Ü
6 comments:
I know how she feels on the prednisone.. i was recently on it too for asthma issues.. and i ate alot.. i was always hungry.. it took me a few days to figure out what the deal was but then remembered that was a side effect.. hope all her health clears up.. atleast you know what it is now.. take care!! we still need to swap babysitting :)
I'm so sorry Abby has to go through all of this. I am praying for your cute family.
I hate the your family as to bear this kind of thing. Know we are here for you if you need anything.
I was a kid that had a disease that could only be controlled by prednisone as well - I had a love hate relationship with it! :) I'm so glad to hear that her symptoms are improving and that she's beginning to be herself again. Hang in there - I am sure this is difficult on you as well since you worry so much about her! You're amazing!
Carrie~
Glad to hear that Abby is doing alright! The part about Khalil is so cute! I am glad she is getting inspired to be a great missionary to him! So cute! :0)
Thank you everyone for you kind words, thoughts, and prayers. It really means a lot to us. Ü
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